Bringing parents, clinicians, and researchers together to make a difference

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Hepatoblastoma Community Conference

VIRTUAL

 

Saturday, May 15, 2021

 

10AM EDT – 5PM EDT

 

Thank You to everyone who attended.  We had over 130 people register from 18 different countries! We will get out the releasable content from the conference out as soon as possible. We look forward to seeing you in Boston for the 2022 conference! 

 

 

Morning Events:

Presentation on Hepatoblastoma Community Initiatives

Presentation on Research & Novel Treatments for Hepatoblastoma

*Panel of Worldwide Hepatoblastoma Experts – Extended Question & Answer Session*

ChiLTERN (European Parent Network) Meet & Greet Discussion Group

 

 

 

Afternoon Events:

Breakout Group 1: Survivor Parent Panel & Discussion

Introductions, bone/teeth density, cognitive development, 

post-therapy monitoring, quality of life

 

Breakout Group 2: Relapse/Refractory Parent Panel & Discussion

Introductions, scanxiety, AFP trends, relapse registry/database, nutrition

 

Breakout Group 3: Bereaved Parent Panel & Discussion

Introductions, healing after loss, legacy & remembering your child, 

sibling & family impact

 

 

 

 

 

 

 

Want to know more… read about our 2020 conference

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