Schedule of Events

Friday Feb 28th, 2020 (7:30am – 5:00pm)

The Summit A Dolce Hotel (5345 Medpace Way, Cincinnati, OH 45227) 

Hosted by Cincinnati Children’s Hospital

No Registration Fee

 

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Thursday Evening: A non-awkward social experience for parents (we promise) 

Location: The Summit A Dolce Hotel (drinks/light snacks included)

 

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Friday Morning: Presentations

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-Breakfast (included) & informal introductions

-Hepatoblastoma community update & parent global initiatives

-HOPE epidemiology study

-Survivorship & Relapse/Refractory background related to chemo, surgery & transplant

-Relapse/Refractory registry and data management

 

Group Lunch: At the hotel with parents and clinicians (included)

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Friday Afternoon: Discussions Groups and Review of Priorities

 

(Groups A & B will occur simultaneously.  Please decide which group best fits your interest)

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A. Parent led discussion on defining priorities for advancement with relapse/refractory disease (research and data collection for new therapies)

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B. Parent led discussion on defining priorities for advancement focusing on outcomes beyond cure (survivorship concerns)

 

-Data management and global considerations

-Defining the Hepatoblastoma research community

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Friday Evening: Parent & clinician dinner (not included)

Location: TBD

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This exciting opportunity will be the first global gathering for our community. If you are still wondering if this conference is for you, feel free to contact us with any questions!

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