Our story is your story.
Welcome to the Hepatoblastoma Resource Network (HRN)
We are a nonprofit organization supporting families affected by hepatoblastoma and other pediatric liver cancers. Every member of our leadership team has walked this exact path—navigating the journey of a child with hepatoblastoma firsthand. We exist to fill a profound gap: families facing these rare diagnoses have almost nowhere to turn for disease-specific, trustworthy, family-centered information and support.
HRN was founded in 2019 by Christina and Cody Stiverson, in memory of their daughter, Adelaide ("Addie"), who passed away from chemo-resistant, metastatic hepatoblastoma (a rare liver cancer). Learn more about her journey at Addie’s Research.
Patient-Centered. Family-Led. Community-Built.
OUR MISSION
To support families affected by hepatoblastoma and other pediatric liver cancers by providing credible resources, fostering community, and advancing collaborative care and research.
OUR VISION
A world where every family navigating hepatoblastoma and other pediatric liver cancers has the tools and knowledge to navigate care with confidence.
HRN Leadership
Meet the team
Our Partners
-
![Dr. James Geller - Hepatoblastoma Resource]()
Dr. James Geller
MD
Pediatric Hematologist/Oncologist at Rady Children’s Hospital–San Diego
Professor of Pediatrics at the University of California San Diego -
![]()
Dr. Andras Heczey
MD
Scientific Director of Translational Research Cell, Gene and Protein Therapeutics, Seattle Children's Research Institute
Janet and Jim Sinegal Endowed Chair in Pediatric Solid Tumor Research in honor of Korey Rose
Professor of Pediatrics Ben Towne Center for Childhood Cancer and Blood Disorders Research, University of Washington -
![Dr. Allison - Hepatoblastoma Resource Network]()
Dr. Allison F. O'Neill
MD
Oncologist, Dana Farber Institute
Vice President for Clinical Performance Management
Clinical Director, Solid Tumor Center
Director of Medical Therapies, Liver Tumor Center
Senior Physician
Associate Professor of Pediatrics, Harvard Medical School -
![]()
Dr. Arun Rangaswami
MD
Professor, Pediatrics, School of Medicine, University of California San Francisco -
![Dr. Logan Spector - Hepatoblastoma Resource Network Partner]()
Dr. Logan Spector
Ph.D.
Chair, Childhood Cancer & Leukemia International Consortium (CLIC) Professor
Director, Division of Epidemiology/Clinical Research
Department of Pediatrics; University of Minnesota -
![Sanjeev A. Vasudevan, MD, FACS, FAAP Professor, Division of Pediatric Surgery]()
Dr. Sanjeev A. Vasudevan
MD, FACS, FAAP
Professor, Division of Pediatric Surgery at Baylor College of Medicine
Pediatric Surgeon-scientist at Texas Children’s Hospital
-
Foundation for Addie's Research
-
BARE - Biliary Atresia Research & Education
-
Eureka Therapeutics
We exist to shine a light on hepatoblastoma—a rare and aggressive liver cancer that primarily affects babies and young children. Increased awareness is essential to help families recognize the challenges of this disease, encourage support for pediatric cancer research, and ensure that children and their caregivers do not face treatment alone.
We’re in this together.
Join our mailing list to receive updates about HRN and our partners.